So since this whole thing about HPV came up, I've been researching like a maniac. I keep finding things about how it's pretty unlikely that my husband's BOT (base of tongue) cancer is NOT HPV related even though his test came back negative, and especially since it came back negative in a swish test which is considered to be pretty unreliable. So that puts us back to square one. Does he have it? Does he not? How does this effect me in the long run? Am I at a higher risk for cervical cancer now because of this? The more I find out, the more questions I have. I have an appointment with my GYN next week to have my regular PAP test, but I will also be insisting on an HPV test at the same time. This seems to be the best course of action at this time.
My husband's oncologist basically suggested to him that we just "stay off the internet," because it creates more stress and confusion and fear than it alleviates. And as much as I'm in the "knowledge is power" camp, I'm not at all sure he's wrong.
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